As Bad As It Could Get….

The reality of what is left of my life is slowly sinking in, and I mourn my past and my future. When I first diagnosed with COPD I thought that was as bad as it could get. I was given additional puffers and sent to a specialist. Three months later when I had my first…

What I Did Get….

· ICCP, Integrated Comprehensive Care Program. ·

Acting as if I was digging my heals in and not ready to leave unless I had some supports, I boldly asked what they would be willing to offer me. I didn’t care what they had to offer, I wanted it. I was tired of being strong and being ignored. I wanted help of some…

My Cardiac Appointment Gone South

· Heading back to my general practitioner in hopes that he can refer me to another, better educated specialist. ·

Happy Heart Month to Everyone. So I am beginning over again. I have had my 4th heart attack in four years, two in the last two months and it seems I can not find a doctor who is interested enough to take me on as a patient. I did go to see a cardiologist last…

Advocacy for Myself Starting Now.

Everytime I get admitted to the hospital Everytime I get admitted to the hospital I go to a different hospital and get a different doctor and a different diagnosis of differing opinions. I get bits and pieces of information and only the parts that the docs want you to know. Also, I have noticed that…

Self-Advocacy for people with COPD, Heart Disease and other Chronic Illnesses.

  First, you are not a victim, you are a Survivor, some say we are a Warrior’s. You are someone who others cannot understand until they become who you are. This information is meant to empower you and help you be more independent in your medical journey to wellness. Self-Advocacy 101 Self advocacy is asking…

Missteps, Mistakes and Misjudgments

My husband and kids were still by my side as I wake up. They have never left me. In Hindsight It All Makes Sense. Leading up to the holidays I became bloated, a feeling that is so uncomfortable and stifling that I could hardly eat anything. I felt an increased shortness of breath and had…

Your ‘TO GO BAG’

My “To Go Bag.” Part 1 Let’s talk about the bag: In light of the hurricanes and tornadoes and natural disasters this would be a great article for everyone to think about, but when you have a chronic illness like COPD you know that there is a good chance that no matter how well you take…

Two pickles, an orange and a banana!

Getting over the holidays and realizing that my symptoms are not all COPD related but Heart Failure related too! We go to my sisters on Christmas Eve, it is a long-standing tradition that is not to be missed. It is requires that everyone in my large family attend. There are aunts and uncles and cousins and…